I see myself as a woman of grit and determination, a creative spirit who makes the best of whatever life throws her way. From being a former marathon runner who was diagnosed with chronic progressive MS at age 45, to being nicknamed Grandma Techno 20 years later by fellow ravers decades my junior at Detroit’s annual electronic music festival, I have managed to live life to the full.
I have often surprised myself by my ability to adapt to an ever-progressing disability and the challenges it poses. Even now I manage to continue living at home with the help and support of caregivers and numerous disability devices. My Amigo mobility scooter serves as my “legs.” It gives me much-appreciated feelings of freedom and independence during the day.
Thank goodness my mind is still sharp at 83 so I can take care of my 95 year-old husband who has symptoms of age-related dementia. I take care of our finances, medical appointments, and the upkeep on our beloved house in which we have lived for 54 years.
I try to focus on the present moment, not the past or future. When I do that, I feel such gratitude for what I can still do rather than worrying about what might come next. I try to plan for the future but not worry about it. I would say that my lived experience has taught me to trust that I will be given what I need when I need it.
The word most often used to describe me is “inspiring.” I’m not sure exactly what that means but perhaps it is a reflection of how I keep moving forward with a positive outlook no matter what. It feels natural to me, but maybe it is not the norm. Perhaps when others encounter obstacles and limitations - especially those caused by health related conditions - they tend to give up or give in to despair.
I consider myself fortunate to have been raised by parents who never let obstacles get in the way of their goals and aspirations. They taught my sisters and me by their example to stay strong and authentic no matter what. The glass is always half full.
Life expectancy 2023
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